Adirondack

Covid Update

The IMF applauds the efforts of the volunteer leaders that conduct local and virtual myeloma support group meetings.  We are cautiously optimistic for local support groups to return back to in-person or hybrid meetings (combination of in-person and virtual).

Each group will decide the meeting format that works best for their members: to remain virtual, or to meet in person, hybrid or alternating hybrid.  Please contact group leader below for details.

Stock Support Group Meeting

Our meetings are currently being held outside and in person at Rocksport. We will continue to do this until the weather no longer allows, then we will meet in the community room at Rocksport. We ask our members to bring a comfortable outdoor chair, if they have one, otherwise we can provide a chair. 

For information to join, please contact Kelley McAfee at 518-260-2102 or Shannon Beckwith at 518-207-7569 or by E-mail at [email protected].

JOIN SUPPORT GROUP

For more information, please contact

Kelley McAfee 518-260-2102

Shannon Beckwith 518-207-7569

Group Email Address: [email protected]

 

Winter Weather Information:

 

In case of inclement weather, our meeting will be cancelled when Rocksport cancels their services. However, weather conditions vary throughout the region, so please use your discretion and only venture out if you feel that the roads are safe for travel. You can check the Rocksport website at https://rocksportny.com/

Meeting time1st Friday of each month from 2:00 - 4:00 PM (Except January and July)
Meeting Location Rocksport Indoor Climbing Center (Community Room)
54 Carey Road
Queensbury, NY 12804
Get directions
Locate

43.2932469, -73.6919266

Upcoming events

IMF Events

Dec 20
Best of ASH 2022 Webinar
December 20, 2022 4:00 pm PST

Support Group Events

Dec 02
Adirondack Monthly Meeting
December 2, 2022 2:00 pm to 4:00 pm EST
Jan 06
Adirondack Monthly Meeting
January 6, 2023 2:00 pm to 4:00 pm EST
Feb 03
Adirondack Monthly Meeting
February 3, 2023 2:00 pm to 4:00 pm EST
Mar 03
Adirondack Monthly Meeting
March 3, 2023 2:00 pm to 4:00 pm EST
Apr 07
Adirondack Monthly Meeting
April 7, 2023 2:00 pm to 4:00 pm EST
May 05
Adirondack Monthly Meeting
May 5, 2023 2:00 pm to 4:00 pm EST

Adirondack Multiple Myeloma Support Group vision, mission statement, core values and goals has been developed and accepted by its members in June 2021. This is a fluid document to be reviewed annually by the members and updated as needed. 

Vision

The vision of the Adirondack Multiple Myeloma Support Group (MMSG) strives to serve the greater Glens Falls/Adirondack geographical area. We welcome significant others/partners, family members and close friends to join the individual with Multiple Myeloma or come on their own. Adirondack MMSG promotes a compassionate environment for multiple myeloma patients to share in their journey while providing educational opportunities and support to its members through fellowship.

Mission

The mission of the Adirondack MMSG promotes education and support to myeloma patients, care providers and significant others through formal (such as the International Foundation & Multiple Myeloma Research Foundation) and informal methods (members unique experiences). We invite guest speakers to share with us medical and health related information as well as complementary and alternative therapies available to individuals dealing with a chronic disease to promote physical, emotional, spiritual and psychological well being. 

Core values

Our meetings are based on building a community of trust. This is demonstrated through compassionate sharing, demonstration of respect for one another and confidentiality among the members with the intent to build caring relationships with one another. 

The goals for the Adirondack Multiple Myeloma Support Group are to:

  1. Meet regularly to share in our myeloma journey and support one another. 
  2. Engage annually (as opportunity arises and the group determines) in the greater Glens Falls/Adirondack geographical area by an opportunity to educate the public regarding multiple myeloma.  

 

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Week in Review by Dr. Brian G.M. Durie
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About Us

The Adirondack Multiple Myeloma Support Group inception occurred in September 2018 by Co-leaders Kelley McAfee and Traci Wallace. Kelley reached out to Traci on a myeloma Facebook page after finding out they lived close to one another. Traci was kind enough to meet for coffee to discuss this opportunity. Thanks to Traci’s willingness to join in this endeavor and we were off and running. In our experience we have been fortunate to balance our roles to manage the support group as well as establish a great friendship in one another. Over these few years, we have welcomed many members as well as experienced the loss of some of our members due to this disease. We strive to remain positive and lean on one another to continue what we have started. 

With the support of our members and with our partners at Rocksport Indoor Climbing Center on March 4, 2020 we had our first blood drive. This was a community activity that promoted a passion we felt made a difference in our community and had the potential to benefit each of us. It also provided the members the opportunity to share their myeloma story and educate our donors on this rare incurable form of cancer. It was a wonderful experience for all involved and we exceeded expectations for the pints of blood donated. We hope to make this an annual event beginning in 2022.

 

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The International Myeloma Foundation supports March identifies Myeloma Awareness Month. To engage in this effort the Adirondack MMSG has done several things to participate on a local level. In March of 2020 several of the members created unique collages using pictures and words to represent themselves on their myeloma journey. We had these laminated and set up in our local cancer center to share with other cancer patients. In March of 2021 Kelley and Traci were interviewed by the local newspaper, Post Star, regarding myeloma, what it is and about their journey’s. 

The article can be found at: https://poststar.com/news/local/support-group-aids-people-with-multiple-myeloma-a-roller-coaster-disease/article_1f38cfd2-fcad-534d-b597-79db57a364b7.html 

 

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