Our Vision:
A world where every myeloma patient can live life to the fullest,
unburdened by the disease.
I am a...
![imf president and ceo yelak biru](https://imf-d8-prod.s3.us-west-1.wasabisys.com/2025-01/yelak-biru-with-play-button_1.png)
This week's blog talks about the recent announcement made by the U.S. Department of Health and Human Services (HHS) and the Centers for Medicare & Medicaid Services (CMS) regarding the selection of an additional 15 drugs for Medicare Part D price negotiations, including Pomalyst (pomalidomide). This development is significant for the myeloma community, as Pomalyst plays a critical role in treating relapsed or refractory multiple myeloma. Negotiations for Pomalyst and other selected drugs will begin in 2025, with new prices expected to take effect in 2027. While this process represents a significant effort to address rising costs, the outcomes could shape how therapies are covered and accessed under Medicare. The myeloma community can trust that the International Myeloma Foundation (IMF) will continue advocating for policies that prioritize patient needs—ensuring affordability without compromising access to life-saving therapies like Pomalyst. READ THE BLOG.
Can multiple myeloma patients skip 24-hour urine tests to monitor their care? This study shows urine-free criteria simplify trials with no major impact on progression-free survival (PFS). Watch the full video to learn more. WATCH NOW.
The International Myeloma Foundation (IMF) is excited to announce that the 2025 Boca Raton Patient and Family Seminar will take place on March 14-15, 2025, in Boca Raton, Florida. The seminar is FREE, but in-person seating is LIMITED. Speakers include IMF President & CEO and 29-year myeloma patient Yelak Biru; IMF Vice President of Development Sylvia Dsouza; IMF Vice President of Patient Support Robin Tuohy; IMF InfoLine Advisor Teresa Miceli, RN, BSN, OSN; IMF Chief Medical Officer Dr. Joseph Mikhael; and IMF Support Group Leader and 24-year myeloma survivor Michael Tuohy. Many topics will be covered, including shared decision-making, financial considerations in myeloma, emotional and physical well-being, clinical trials with patient/care partner testimonials, health disparities in myeloma, and a fireside chat on the future of myeloma, to name a few. Visit the event page for more details and to register for the Boca Raton PFS. SAVE MY SEAT.
In this webinar, IMF Chief Medical Officer Dr. Joseph Mikhael and an expert panel highlighted key takeaways from the 2024 ASH Conference, where over 1,000 myeloma-focused abstracts were presented. Watch the replay to learn about the latest in CAR T-cell therapy, bispecific antibodies, and MRD testing, along with insights into quality of life, real-world data, and health disparities. Hear from patient advocates and support group leaders as they share the patient perspective. WATCH THE REPLAY.
The International Myeloma Foundation (IMF) is excited to announce that an in-person Regional Community Workshop will take place on March 29, 2025, in San Francisco at the Grand Hyatt at SFO. More details coming soon! LEARN MORE.
The IMF’s Miracles for Myeloma Virtual/In-Person 5K Run/Walk will take place on Saturday, March 15, 2025, at 7:00 a.m. EST in Boca Raton, Florida. The race starts and finishes at the Boca Raton Marriott at Boca Center (5150 Town Center Circle). All proceeds from this event will fund the IMF’s life-saving research and work to find a cure. Register to run in person, or from any location in the world. You may also choose to honor a loved one along the Remembrance Path. LEARN MORE.
![IMF Board Member and myeloma patient advocate Yelak Biru](https://imf-d8-prod.s3.us-west-1.wasabisys.com/2020-10/myeloma-patient-yelak-biru.jpg)
![MPower Hub image](https://imf-d8-prod.s3.us-west-1.wasabisys.com/2022-06/MPower-hub-no-waves.jpg)
![fathers and children lined up to race outside](https://imf-d8-prod.s3.us-west-1.wasabisys.com/2020-10/father-children-relay-race-start.jpg)
Need assistance in creating a fundraiser? The IMF team is here for you. Find out how you can help in the fight against myeloma today!
![Close up of runner's shoes during a marathon](https://imf-d8-prod.s3.us-west-1.wasabisys.com/2020-10/shoes-of-runners-in-marathon.jpg)