Our Vision:
A world where every myeloma patient can live life to the fullest,
unburdened by the disease.
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This week’s blog is adapted from a talk that Wendy Thomas, RN, MSN, CHPN, gave at the IMF Patient and Family Seminar in Los Angeles in August 2024. In the blog, Wendy discusses advance care planning in terms of conversations patients must have with their loved ones, if patients are unable to make decisions for themselves. While difficult, conversations about advance care planning are essential for people living with multiple myeloma. READ THE BLOG
The next Las Voces de Mieloma (Spanish/Virtual) Support Group will be from 10:00 a.m. - 11:00 a.m. PST on Tuesday, October 15, with the speaker Jesus G. Berdeja, MD (Director, Investigación del Mieloma Múltiple at Tennessee Oncology in Nashville). The topic will be bispecific antibody treatment for multiple myeloma. REGISTER NOW.
La próxima reunión del grupo de apoyo Las Voces de Mieloma (español/virtual) será el martes 15 de octubre, de 10:00 a. m. a 11:00 a. m. (Tiempo del Pacifico) con el orador Dr. Jesús G. Berdeja, MD (Director, Investigación del Mieloma Múltiple en Tennessee Oncología en Nashville). El tema será: El Tratamiento Con Anticuerpos Biespecíficos Para El Mieloma Múltiple. REGÍSTRESE AHORA.
Ever have a question about myeloma pop up at 3 a.m., leaving you frustrated and searching for answers? Now you can get the answers you need, anytime. Say hello to Myelo, your 24/7 Generative AI assistant specifically designed to support you on your myeloma journey. You can learn more about Myelo with the following FAQ: READ THE FAQ ON MYELO.
The International Myeloma Foundation (IMF) has just launched an exciting new tool for myeloma patients—the IMF Clinical Trials Matching Engine, in partnership with SparkCures. This innovative platform makes it easier than ever for patients, care partners, and healthcare providers to find personalized, location-based clinical trials tailored to their needs. The Clinical Trials Matching Engine simplifies searching for clinical trials while empowering patients to make informed decisions about their care. Curious to learn more about how this tool could help you or a loved one? READ THE FULL PRESS RELEASE.
The International Myeloma Foundation (IMF) is excited to announce that an in-person Regional Community Workshop will take place on October 19, 2024, in Kansas City, MO, at the Westin Kansas City at the Crown Center (1 Pershing Road). The event's speakers include IMF Vice President of Patient Support Robin Tuohy; Al-Ola Abdallah, MD (KU Medical Center, University of Kansas — Kansas City, MO); Attaya Suvannasankha, MD (Indiana University School of Medicine — Indianapolis, IN); and IMF InfoLine Advisor Teresa Miceli RN, BSN, OCN (Mayo Clinic — Rochester, MN). There will also be a special patient and care partner panel with Lou and David Sears. Seating is limited! SAVE MY SEAT.
Join IMF Vice President of Patient Support Robin Tuohy on Thursday, October 17, 2024, at 4:00 p.m. PT | 5:00 p.m. MT | 6:00 PM CT | 7:00 PM ET, for a “Living Well with Myeloma” webinar on Harmonizing Nutrition and Novel Therapies. Robin will moderate a discussion with Abbey Reiser, MS, RDN, CDN, CSO (Mount Sinai Hospital — New York) and IMF Nurse Leadership Board Member Donna Catamero, ANP-BC, OCN, CCRC (Associate Director, Myeloma Research at the Icahn School of Medicine at Mount Sinai Health System — New York). This webinar will cover the importance of nutrition in supporting myeloma treatment and overall health, dietary recommendations, the role of nutritional supplements, as well as practical tips for integrating nutrition with bispecific treatments SAVE MY SEAT.
Need assistance in creating a fundraiser? The IMF team is here for you. Find out how you can help in the fight against myeloma today!